© 2018 Julian Benson Cystic Fibrosis Foundation. All Rights Reserved.

01 676 4377      info@jbcff.com      CHY:22298      Registered Charity Number: 20201626
A talent agent, dancer, and choreographer, Julian Benson became a household name in 2017 when he joined the judging panel on RTÉ’s Dancing with the Stars. Affectionately known as Captain Sparkle for his trademark sparkly, custom-made jackets, he quickly became a show favourite. He will be remembered not only for his quick witty one-liners but also for his unwavering kindness and encouragement towards the contestants. 

 

Julian was diagnosed with Cystic Fibrosis at the age of two. But rather than let this challenge define him, Julian decided to embrace life fully. He began dancing at the age of four and embarked on a professional career at just 14 – an incredible achievement for anyone, let alone someone living with a chronic lung condition. His determination and passion became the driving force behind everything he did. 

 

For over 40 years, Julian kept his diagnosis private. It was only in 2018, during an emotional appearance on The Late Late Show with Ryan Tubridy, that he revealed his lifelong illness and shared his dream of creating a charity to support the CF community. That night, he announced the birth of the Julian Benson Cystic Fibrosis Foundation (JBCFF) and said: “I have Cystic Fibrosis, but Cystic Fibrosis doesn’t have me.” 

 

Julian’s mission was always clear: to provide vital support and services to CF warriors and their families, including a home from home while their loved ones receive treatment in hospital. His dream became a reality with the opening of Tranquility House – a space where families can find comfort and peace during difficult times. This extraordinary achievement was made possible by the generosity of over 130 companies and individuals who believed in Julian’s vision. The remarkable transformation of Tranquility 

House, featured on Room to Improve in January 2025, is a testament to the power of 

community and to Julian’s unyielding determination. 

 

Julian passed away on 18 April 2025, surrounded by his loving family and closest friends, after a courageous battle with Cystic Fibrosis. His strength, warmth, and sparkle remained with him until the very end. 

Julian’s sparkle remains alive in Tranquility House, in the continued work of the Julian Benson Cystic Fibrosis Foundation, and in the hearts of all who knew him. His energy, passion, and joy for life live on through the countless lives he touched, the community he built, and the legacy he leaves behind. “Cha Cha Boom!” – his iconic catchphrase – will forever be synonymous with his vibrant spirit, his unwavering zest for life, and the joy he brought to everyone around him.